PLWHIV are placing themselves at the centre to End the Epidemic by 2030

HIV Cure Agenda- Community voices are key

Despite widespread support for MIPA principles, meaningful involvement of PLHIV and other community stakeholders can be challenging to achieve and is not applied consistently in all areas of HIV-related clinical research. A recent systematic review found that community stakeholder involvement predominantly occurs in the early stages of a trial, often to support participant recruitment, but is limited in later trial stages. Methods used to engage with communities are also often researcher driven and utilize formal consultation methods, such as interviews or focus groups, that do not afford PLHIV any power to influence the research process. A team of close to 150 HIV Cure CAB members and Cure alumni's met to discuss strategies to ensure continuous meaning involvement of community in the Cure Agenda

Read More